Victor, 3, suffers from a rare genetic disease: his parents create an association

Victor, 3, suffers from fucosidosis, a rare and little-known genetic disease.

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The fact

His parents, Elodie and Kevin, created an association after 18 months of medical wandering.

Based in Gignac (Hérault), it aims to raise awareness and fund research.

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Auto-synthesis from 1 media source · identified on September 25, 2026